September 30, 2022: Dehydration

Saturday, October 1, 2022 · by kathy howe

This morning Kathy called the clinic about Sam’s continued nausea and dehydration, and the care team there squeezed him in to get some fluids and better anti nausea meds. It’s made a huge and immediate difference; Sam is out right now at the Paly football game with some friends and we should be a go for Homecoming tomorrow.  (We will go in for one more bag of fluid tomorrow morning, too.)

 

The difference has been amazing, and we are armed with more techniques for next time we go in for the high dose methotrexate (probably Thursday). Other than the nausea and dehydration, numbers are all looking really great. Fingers crossed for a good night of sleep. 

 

And: we are both beyond grateful for the attention, care and kindness from the team at LPCH. Everyone understands that getting to homecoming is important to Sam, and they pulled out all the stops to make it possible. They were so kind, and so focused on delivering the thing that he really wanted. Fills up our emotional gas tanks, fills up our hearts. 

♥ 28 hearts

9 comments

Gowri G · Saturday, October 1, 2022
Great news! Thank you, Kathy, for continuing to follow your instincts , and asking the care team to do better for Sam. So glad he made it to the game!
Allie Lawler · Saturday, October 1, 2022
Yay for feeling better! And yay for homecoming!
John Lilly · Saturday, October 1, 2022
Fingers crossed for progress, Sam. We think about you all the time and are pulling for you.
Erin Lavik · Saturday, October 1, 2022
I'm so glad they are supporting him so well. Thinking of you all.
Palon Shuster · Saturday, October 1, 2022
So happy the new meds and hydration is making Sam feel much better. And thrilled that he's going to make it to Homecoming.
Marci Kwan · Saturday, October 1, 2022
I can’t wait to see his homecoming pics ❤️
Jennifer White · Sunday, October 2, 2022
What a marathon of vigilance you all are running. I'm so glad to hear the treatment helped dramatically and that he can be with his friends having fun at homecoming. :)
Jan Schubert · Sunday, October 2, 2022
Peace and love and hope to you and Sam and your family, Kathy. Hope you can feel the love and prayers surrounding you. - jan
kathy howe · Sunday, October 2, 2022
He got a great night of sleep last night! And no vomit since Friday morning 🙌🏼