October 2, 2022: Current Question: what is the right balance between sleep and staying ahead of the nausea?
Right now the plan that we’ve been following is to take anti-nausea meds before bed and then let Sam sleep through the night and then wake up when he wakes up and take the next round of anti-nausea meds as soon as he can. The problem with this plan is he wakes up …………..nauseous. And then can’t take the medicine for a bit until his stomach settles.
He’s not wanting to try waking up in the middle of the night though to see if that might change things as he values a full night’s sleep (and hates napping — is this kid MY kid?!?!? I ***love*** napping 💤). And I appreciate the good night’s sleep motivation. And, for better or worse, he’s a very strong minded, unconventional young man. Which is great most of the time…..except when it’s not.
hmmmmmm…….
I think I may have just gotten through a bit. My argument: “Feeling like you do sucks. And if we try something new, it may still suck and you may be tired too. But there’s some chance it will make things better. And there’s some chance it makes things somewhat better *and* you go back to sleep like Rip Van Winkle. If we just stay the course, we know the suckage level and we know that it’s not fun. I *think* it’s better to try something new and take a risk — at least we will have tried to make a change towards less suckage.”
🤞🏼
#stopthenauseasuckage
#FULeukemia
#TeamSam
7 comments
Having mucositis in his esophagus doesn’t help either.