Heading Home Tomorrow

Wednesday, April 12, 2023 · by John Lilly

The good news from today is that Sam's officially engrafted, and everything looks good. So good, in fact, that they'll send us home tomorrow.  (Characteristically, Sam: "How about today?" Medical team was amused, but: "How about no?")

Anyway, we're working on getting ready for him to come home.  Finishing up a little training at the hospital, figuring out the new meds regime, getting the house as deep cleaned as we can, regretfully throwing away some of the more...colorful...inhabitants of our fridge.

He's feeling good & ready. It will definitely be an adjustment. 

We'll be back to the clinic on Friday, starting a few weeks of 3x appointments, but outpatient is a whole different deal.

Next up other than clinic appointments is the T-allo10 infusion in the next 10 days or so (he'll get a big boost of Kathy's T-cells (new trial going on at Stanford; Sam's the 11th recipient to go through it). And then a bone marrow biopsy at 30 days (so ~April 28) to see if we can see any leukemia -- that'll take a week or two to come back. 

We'll be in a 3-6+ month period of extra care & isolation while Sam's immune system grows back in, but life should be relatively normal for Zack, give or take.

In the meantime we should get a chimerism test back next week that shows the % of blood cells that are Sam's original versus the new ones derived from Kathy's -- we anticipate 90%+ from Kathy's, and hopefully much higher, as we are not huge fans of Sam's original system at this point.

And we likely will end up back at the hospital for a stay or two because of various infections as Sam re-enters the world -- so we'll watch for fevers, etc. 

But this is a big step; feels really different than anything else has in the last year or so. LFG.

♥ 47 hearts

24 comments

Gowri G · Wednesday, April 12, 2023
Happy homecoming!
David Hornik · Wednesday, April 12, 2023
Huge. Mazel Tov!
John Lilly · Wednesday, April 12, 2023
This is such good news. Huzzah to all of you guys!
Dana Lilly · Wednesday, April 12, 2023
Amazing news!!! I’m sure Sam is ready to go home, and maybe “why not today?” Tomorrow sounds pretty good for everyone, though. Enjoy each other and give everyone extra hugs for us. ❤️❤️❤️❤️
Natalya Crump · Wednesday, April 12, 2023
Excellent! Congratulations!!
Jennifer White · Wednesday, April 12, 2023
Happy happy joy joy!!
Andrew Korb · Wednesday, April 12, 2023
Wonderful news, thanks so much for sharing. Lots of love to you all!
Blake Korb · Wednesday, April 12, 2023
Wooo hoo!!!!
Helen Yeni-Komshian · Wednesday, April 12, 2023
Yes!!!!! Yay!!!!!!! So happy to hear this wonderful news!
Elizabeth Gomez · Wednesday, April 12, 2023
Science is amazing! And you guys are too!
Bryan Rollins · Wednesday, April 12, 2023
How about today? 🤣🤣🤣 Like father, like son...
So excited Sam is heading home. That's the best news.
Emily Mencken · Wednesday, April 12, 2023
The best news!!
Steph Hannon · Wednesday, April 12, 2023
Best best best news! Will he have any food restrictions or special diet when he gets home?
John Lilly · Wednesday, April 12, 2023
Yeah - not much produce that doesn’t have a peel or other stuff that might have viruses or bacteria or fungus
Jennifer McMurray · Wednesday, April 12, 2023
Fantastic News - Yay!!!!!
Jennifer Gaunce · Thursday, April 13, 2023
A good day!!
Cindy McLaughlin · Thursday, April 13, 2023
Gooooooo Sammmmm!!!! ♥️♥️
Chris Yeh · Thursday, April 13, 2023
Time to celebrate!
John Lilly · Thursday, April 13, 2023
MFBT. Yes.
Anabel Pearson · Thursday, April 13, 2023
No place like home!! Welcome home sam !! Enjoy the comforts of your bed and toys!
Michelle Stewart · Thursday, April 13, 2023
Such fantastic news! Keeping the prayers and love coming your way during this next step. <3
Elizabeth Lilly · Thursday, April 13, 2023
Fantastic news! Love to all of you!
Vadim Axelrod · Thursday, April 13, 2023
Amazing to hear!!!
joelle kaufman · Friday, April 14, 2023
Go Sam! Fabulous that he gets to come home. Good luck with all the adjustments.