Heading Home Tomorrow
The good news from today is that Sam's officially engrafted, and everything looks good. So good, in fact, that they'll send us home tomorrow. (Characteristically, Sam: "How about today?" Medical team was amused, but: "How about no?")
Anyway, we're working on getting ready for him to come home. Finishing up a little training at the hospital, figuring out the new meds regime, getting the house as deep cleaned as we can, regretfully throwing away some of the more...colorful...inhabitants of our fridge.
He's feeling good & ready. It will definitely be an adjustment.
We'll be back to the clinic on Friday, starting a few weeks of 3x appointments, but outpatient is a whole different deal.
Next up other than clinic appointments is the T-allo10 infusion in the next 10 days or so (he'll get a big boost of Kathy's T-cells (new trial going on at Stanford; Sam's the 11th recipient to go through it). And then a bone marrow biopsy at 30 days (so ~April 28) to see if we can see any leukemia -- that'll take a week or two to come back.
We'll be in a 3-6+ month period of extra care & isolation while Sam's immune system grows back in, but life should be relatively normal for Zack, give or take.
In the meantime we should get a chimerism test back next week that shows the % of blood cells that are Sam's original versus the new ones derived from Kathy's -- we anticipate 90%+ from Kathy's, and hopefully much higher, as we are not huge fans of Sam's original system at this point.
And we likely will end up back at the hospital for a stay or two because of various infections as Sam re-enters the world -- so we'll watch for fevers, etc.
But this is a big step; feels really different than anything else has in the last year or so. LFG.
24 comments
So excited Sam is heading home. That's the best news.