May 1, 2023: Today and Thursday (Days +33 and +36)

Monday, May 1, 2023 · by kathy howe

Hope you all had a good weekend! The weather was really nice here. It was prom for Sam’s high school on Saturday and I saw the 12 (?!?!?!) busses as they were heading out to their destination and to be honest, was a bit melancholy that Sam wasn’t with them.  But I know next year, he will be! 

Today is his bone marrow aspirate so please send his bone marrow extra juju, karma, prayers, light, good wishes, vibes and all the good things!  We are hoping it’s 100% B+ now (he was 0 negative before).

And Thursday he will get his boost of T Cells for the clinical trial we are on.  We are super grateful to be on that trial as only 1 patient per month can participate due to limited clinical capacity and, while the N is tiny still, the results are promising: 7 out of 10 patients so far have seen their immune system reconstitute by day +60 where only 30% of post transplant patients would see that result before (that doesn’t mean that those patients’ immune systems are less likely to reconstitute, it just means the timeline is longer.  And as far as we know, there are no “down sides” to being on this trial — the other 3 patients have progressed just not as quickly).  

We’re on Day + 33 today.

And Sam is going to hike the dish for the first time post-transplant today with his friend Alec.

It’s gonna be a good week!

#LFGStemCells

#TeamSamStrong

#FULeukemia

♥ 52 hearts

17 comments

Cindy McLaughlin · Monday, May 1, 2023
Go Samstemcells!!! We're all rooting for you. xoxo
Suchi Sairam · Monday, May 1, 2023
Bone marrow juju!!!!! 🥳🥳🥳 ❤️❤️❤️
John Lilly · Monday, May 1, 2023
Go, Sam. Good luck with the marrow draw! Enjoy your hike to the Dish.
Dana Lilly · Monday, May 1, 2023
Fingers and toes doubled crossed along with prayers, hearts, bear hugs, and extra juju !!! Good luck!!! ❤️❤️❤️❤️
Jim Mack · Monday, May 1, 2023
Prayers for 100%B+❤️
Claudia Hung · Monday, May 1, 2023
Sending all the good juju, unicorns, and love Sam’s way. 🥰
Andrew Korb · Monday, May 1, 2023
Lots of love from (crazy) Florida!
Michelle Stewart · Monday, May 1, 2023
Sending love and hugs. Eager to hear how the hiking went!
David Hornik · Monday, May 1, 2023
I’m not used to wishing for a B+. But in this instance I am all in!
Sean White · Monday, May 1, 2023
Sending all the juju!
Anabel Pearson · Monday, May 1, 2023
You’ve got this Sam !! Dish is a cool hike!!enjoy the views !! Hope it inspires you and gives you positive energy!! so glad you told me to hike /run it ..maybe you can take my niece’s nephew Chole (baseball player who lives in boerne ,Texas) up to the dish this fall for he will be attending college in Cali .
Prom will be even better next year because sam will attend!!
Lisa Allie · Monday, May 1, 2023
Today is a big day indeed! Bone marrow draw and an impressive hike. Good luck with both and praying for 100% chimerism!
Grandma Howe · Tuesday, May 2, 2023
Sam has been on my heart all day today knowing that it was his bone aspirate day. And I’m so glad he got to walk the dish today.❤️❤️❤️❤️❤️
Elizabeth Lilly · Tuesday, May 2, 2023
Hope all went well yesterday! I sent love and prayers for Sam and his bone marrow. Happy to hear he has stamina for a hike!
shelley watanabe · Tuesday, May 2, 2023
Great to hear all is going well. Love to all.
hunter walk · Tuesday, May 2, 2023
AMAZING. LET'S GO!!!!!
eve blossom · Wednesday, May 3, 2023
+34 today...good juju all around.