November 30, 2023: Mitogen test passed!!! (Day +236)

Wednesday, December 6, 2023 · by kathy howe

We found out on Tuesday November 28 that Sam’s immune system had passed the 2 main components (out of 3) of the mitogen test.

This means he can fight off the main antigens that are found in our world — viruses, bacteria, fungus — they can still make him sick of course (his Superman status not withstanding :) but his immune system can fight them off now — what a great thing that is!  Please take a moment to thank your immune system — it’s f—king amazing.

And he can do crazy things like go into buildings (if it’s crowded, he still needs to wear a mask)! And drink smoothies made from berries!  And come off the restrictive Stem Cell Diet.  And ride on an airplane (hope to visit 1 or more colleges in the new year — what fun that will be!)

It’s been 8 months since his transplant so Dr. B and NP Karen were very happy to see his mitogen test “bump up” (he was at 50% in October during the last mitogen test). As far as I can tell, each person recovers in their own time but I think 8 months is solid as far as the “big picture” of stem cell transplant recovery rates, especially given he had some acute graft vs. host disease to contend with (and had to take steroids which suppressed his immune system and therefore delayed his immune system’s reconstitution).

A note about school — they recommend that he continues to school from home for the remainder of the semester but he is set to return to in person schooling in January as we’d been hoping. Yay!  Have to factor in the “2 week” buffer to account for all the traveling that everyone will no doubt do — but a good mask will probably be enough to keep him safe as everyone mixes back together.  And if he gets rhinovirus or other viruses or bacteria, his body has the immune cells to fight. 💪🏼

And we can go see friends for the winter holidays! So we are busily finding accommodations for our sweet dog Milo and making hotel reservations. Going to drive to SoCal like we did last year.  Hooray! Sam has grown up with this group of young adults and they always support each other and uplift each other through the ups and downs so I know that they will all be glad to be reunited for a few days (we’ve known them since the kids were 3 and we’ve gathered together most NYEs for the past 15 years — but most of them live on the east coast so we don’t see them very often :().

And last year he had his blina bag with him when we went to SoCal and this year - no bag!  And spoiler for the next post — he won’t even have his port in! 🤯

He still has to be super mindful about the sunlight and sun exposure so sunscreen is a must — ears and hands and neck are key! 

So much to celebrate! LFG Stem Cells!

#FULeukemia

#TeamSamStrong

 

♥ 35 hearts

25 comments

Michelle Stewart · Wednesday, December 6, 2023
What phenomenal news!!!!!
David Hornik · Wednesday, December 6, 2023
Truly the best news of the year. So wonderful to hear. ❤️
Paige, Zac, Max, and Bel Cook · Wednesday, December 6, 2023
Port removal???? Weeeeeeeee!!!! Hooray for all this excitement.
Jennifer Gaunce · Wednesday, December 6, 2023
This is so wonderful! Go Sam!💪🌲
Claudia Hung · Wednesday, December 6, 2023
Awesome, all around. Happy for Sam and the whole fam. Happy travels and holidays!
Helen Yeni-Komshian · Wednesday, December 6, 2023
Such wonderful news!!!!!! 👍
Erin Lavik · Wednesday, December 6, 2023
Yay!!!! William still wears a mask at school... so Sam's not alone
Rebecca Sheddrick · Wednesday, December 6, 2023
What fabulous news!
Blake Korb · Wednesday, December 6, 2023
What wonderful news all around! You guys deserve the best holiday season :)
Erica Hinton · Wednesday, December 6, 2023
Such great news. Hurray for his immune system, smoothies and so many fun plans ahead!
Jim Mack · Wednesday, December 6, 2023
What fantastic holiday news!!!!
Natalya Crump · Wednesday, December 6, 2023
Hooray!! It's all happening now, back to the normal things - so excited and happy for you all! Just yay. :-)
Dawn Robertson · Wednesday, December 6, 2023
Wonderful news! How exciting for Sam to be able to look forward to school. We’re around for the holidays and can take Milo if you’re in a jam. Franny would love it. Just let me know.
Emily Mencken · Wednesday, December 6, 2023
So glad to hear this most excellent news!!
Palon Shuster · Wednesday, December 6, 2023
Hearing your wonderful news is one of the best gifts of all in this season of acknowledgment.
Dana Lilly · Wednesday, December 6, 2023
Wonderful news for everyone. So happy Sam can go to school in person in January ❤️. Lots to be thankful for this holiday season ❤️
Cindy McLaughlin · Wednesday, December 6, 2023
Yay SamBody!! And do glad you'll make it to NYE!! The kids are excited to see yours this year.
J'Ann Schoonmaker Allen · Wednesday, December 6, 2023
Most wonderful news!!
Anabel Pearson · Wednesday, December 6, 2023
Best update ! Glad Sam and family are good health and spirits! Celebration long over due for the family .
shelley watanabe · Wednesday, December 6, 2023
Wonderful!
Suchi Sairam · Wednesday, December 6, 2023
Love love love ❤️❤️❤️
Dan Bonner · Wednesday, December 6, 2023
Wonderful news, Sam and family !!
Joe Shortt · Thursday, December 7, 2023
Super Sam is back !
Lisa Allie · Thursday, December 7, 2023
This is all such great news! I’m so happy he’s been cleared for all the things!!
Liz O'Donoghue · Monday, December 11, 2023
All this warms my ❤️!