Tomorrow's a Big Day

Wednesday, August 9, 2023 · by John Lilly
Tomorrow's the first day of school in Palo Alto [I know. It's August. It's ridiculous.] For Sam, the first day of 12th grade, and for Zack, the first day of middle school, and 6th grade. 

While it'll still be a couple of months or so until Sam can attend full time, he got the news from his care team yesterday that it's okay for him to attend in person for the first day at least, as long as he's careful, wears a painters' mask, etc. And he is SO HAPPY about it. He's excited just to be there, to be a high school senior with his classmates for a day to start a new year. And to meet his teachers in person and talk through what the next few months will be.

Medically speaking, everything continues to go really well. We're just waiting for one particular test result to improve -- called a Mitogen Induced Lymph Profiler - it's a test to measure how functional Sam's lymphocytes are, and by extension, how robust his immune system is. The test takes 3ish weeks to run, and the numbers from three weeks ago are still quite low (around 9k, and they need to be something like 70k) -- a result of the steroids that he was on until just recently. So we'll run the tests every few weeks, and should see rapid improvement now that he's off steroids. Hopefully September or October, but we think in any event he'll be back without much restriction this semester.

In the meantime, he's about to finish another senior year class (he's already done economics, and now is finishing art) online, and is about halfway through first semester calculus. College application work in full swing. 

He and Zack are both happy and looking forward to a new year. Kathy will definitely put up pictures tomorrow. It's really emotional for Kathy & me to anticipate -- it's honestly so overwhelming to have them both go to school tomorrow that it's hard to write about; hard to think about, even. 

Both boys are ready to go.

As they should be.
♥ 48 hearts

21 comments

Paige, Zac, Max, and Bel Cook · Wednesday, August 9, 2023
Wishing I could be a fly on the wall at both schools, high school and middle. Thinking of you + Kathy tonight and anxious to see the “first day of” photos from tomorrow. Thank you for the detailed explanation of the test (MILP) you’re waiting on. I will educate myself. Steroids are a beast and a burden. Cannot wait to hear about the adventure Sam takes for college admissions!!! Thanks for paving the road, Team Sam ❤️❤️❤️❤️❤️. Love you guys!
J'Ann Schoonmaker Allen · Wednesday, August 9, 2023
Wonderful new! Sending much love to each of you.
Dana Lilly · Wednesday, August 9, 2023
Great news!!! First days, new beginnings, next chapter . . . Hope everyone has a great first week back at school. Enjoy the moment. More to come ❤️
Ellen Levy · Wednesday, August 9, 2023
Greetings from Singapore (Happy National Singapore Day!). I’m so happy to read this update, I can’t tell you! Yay for first days of school and so well-deserved good health. Knowing Sam, his lymphocytes are probably preparing for a full-on comeback any second now.
Dawn Robertson · Wednesday, August 9, 2023
Go get ‘em Sam and Zack!
Amy Roschelle · Wednesday, August 9, 2023
Awesome. Wishing them each a happy year!
Cindy McLaughlin · Wednesday, August 9, 2023
Oh my goodness -- so early! But what a wonderful wonderful way to kick off this all-important school year. We'll be thinking of your whole family tomorrow.
dave lilly · Wednesday, August 9, 2023
So proud of the boys! ❤️
Gowri G · Wednesday, August 9, 2023
Happy 1st day. Maybe some Grewals and Lillys will cross paths at Starbucks before school 😉 ☕️
Imran Maskatia · Wednesday, August 9, 2023
Very happy to see this, what a monumental first day of school this year!
Emily Mencken · Wednesday, August 9, 2023
Such a wonderful milestone for all of you! I hope the boys both have fantastic days!!
Sean White · Wednesday, August 9, 2023
That's great news. For all of you!
Chris Yeh · Wednesday, August 9, 2023
I started picturing this in my mind: https://www.youtube.com/watch?v=oK0H8RTFlj4
Scott Kleper · Wednesday, August 9, 2023
Glad to hear that senior year is kicking off well!
Joe Shortt · Wednesday, August 9, 2023
This year will be an exciting adventure and you Sam have gained a wisdom beyond your years. What an accomplishment so far !
Michelle Stewart · Wednesday, August 9, 2023
Wow! It's overwhelming just to read about! :) So, so happy for you all!
Andrew Korb · Wednesday, August 9, 2023
This is a big day, thanks for sharing the joy of it with us. Lots of love to you all!
Suchi Sairam · Wednesday, August 9, 2023
THIS IS SO GREAT!!! 🥳🥳🥳 So happy for all of you ❤️
Jessica White · Wednesday, August 9, 2023
The most wonderful time of the year! Wishing you great success on the upcoming year. Way to go boys!
Lisa Allie · Wednesday, August 9, 2023
Happy first day of school for both of them! I’m so happy for Sam that he can attend the first day. I know how important it is to be able to do “normal” things and to be with friends. Fingers crossed he continues to get stronger and healthier!
David Hornik · Thursday, August 10, 2023
So great to have him off to the races for his senior year!