Day 60. Still zero. (Today is Day +70 but the test was run on Day 60)

Thursday, June 8, 2023 · by John Lilly

Just got back the +60 day genomic test (1 part per million resolution) looking for leukemia, and still none detectable whatsoever. Huge relief & a very optimistic result. The week or so after Sam gets biopsied are very anxious times while we wait for the results -- this one is great.

He'll have another test at day 90, and then I think we move to quarterly testing (but I'm not 100% sure of that). 

Still working on getting rid of the GVHD on his skin, but lots of positive progress, and we're hoping to start tapering the steroids down starting today. 

And still losing weight pretty fast; he probably needs another 2k calories per day. 

But overall: fantastic. Immune system rebuilding, still on track we think for Paly in August. And we haven't seen any sign of leukemia for nearly 6 months now -- the test he had in December before starting on the blina.

Go go go.

♥ 56 hearts

27 comments

Erin Lavik · Thursday, June 8, 2023
That is wonderful news. Thank you so much for sharing.
Michelle Stewart · Thursday, June 8, 2023
I'm so happy for the great update. Prayers and hugs!
Paulo Correia · Thursday, June 8, 2023
Woohoo! Great to hear, onward and upward! :)
kathy howe · Thursday, June 8, 2023
#FULeukemia — you gone! Let’s go immune system reconstitution! 💪🏼💪🏼
Bryan Rollins · Thursday, June 8, 2023
That's the best news
Anabel Pearson · Thursday, June 8, 2023
Best news !!! Praying for you guys! Sam should try to eat ice cream with whipping cream !
David Hornik · Thursday, June 8, 2023
I have at least 2,000 calories a year that I can give to him. (Great news on the biopsy!)
kathy howe · Friday, June 9, 2023
That’s what I said! I’d happily give him 15 lbs 😂
Cindy McLaughlin · Thursday, June 8, 2023
EXCELLENT news! Eat, dear boy.
Dana Lilly · Thursday, June 8, 2023
This is wonderful news!!! Hugs for everyone ❤️❤️❤️
John Lilly · Thursday, June 8, 2023
This is great. Now to the two other issues. Go, Sam!
Gowri G · Thursday, June 8, 2023
💪🏽
Imran Maskatia · Thursday, June 8, 2023
That's great news, so happy to hear that!
Jennifer White · Thursday, June 8, 2023
Yay!! Cartwheels! Joy!
Jim Mack · Thursday, June 8, 2023
More than fantastic news!
Grandma Howe · Thursday, June 8, 2023
Leukemia at Day + 60 : “Still zero.” So grateful! Fantastic news!! ❤️
Andrew Korb · Thursday, June 8, 2023
Wonderful news, thanks for sharing. Lots of love from crazy Florida!
Beth Howe · Thursday, June 8, 2023
Great news!!
Jessica White · Thursday, June 8, 2023
Go, go, go!
Claudia Hung · Thursday, June 8, 2023
Hurrah!!
Vadim Axelrod · Friday, June 9, 2023
Woot woot woot!
Elizabeth Lilly · Friday, June 9, 2023
Fantastic! It's wonderful to hear such positive news!
Suchi Sairam · Friday, June 9, 2023
This is simply amazing news 🥳🥳🥳
Jennifer Pahlka · Friday, June 9, 2023
I'm so happy to hear this! Go Sam! Go Team Sam! #FULeukemia! And I will second the suggestion of ice cream. Works for me. And apparently it's good for you.
Sean White · Sunday, June 11, 2023
That's great news, and pretty sure I can help with the 2K calories.
Elizabeth Gomez · Monday, June 12, 2023
Excelentes noticias
Liz O'Donoghue · Monday, June 12, 2023
Fantastic!